**StarNet** is an agency
by the Illinois Department of Education which offers ìFamily
of $300 to families to enable them to attend workshops and conferences
in the area. StarNet also has a free, very extensive circulating
of books, audio and video tapes, a large percentage of which deal with
autism. It is very up to date and you can always request that they
an item if they do not have it. They have a very small parent
and a very large professional one and are striving to increase parental
use of their services. There are different locations depending on your
area: Northwest/Central Regions I & III (Macomb and
Northern Region II (DesPlaines and surrounding):847-803-3565: Southern
Region IV (Belleville and surrounding):618-397-8930; Region V
South Suburbs are Region VI 708-957-7010. I do recommend calling the
nearest you and getting on their mailing list - they also sponsor MANY
workshops for parentís of children with soecial needs on all
**Illinois Early Childhood
Clearinghouse** provides a similar program. The phone number
for information on this program is 800/852-4302. The program provides
to $400 per individual (disabled, parent, guardian or immediate family
member of a disabled person) to attend conferences on disability
issues (does not have to be local conference - I used one stipend to
a conference in Maryland!) or $600 per family every 2 years. They
also have a huge library of books to loan, and articles (copies
free). [Most of the articles listed in this packet are available
via the Clearinghouse or StarNet.]
As a vital part of the continuum of services for families, respite helps prevent out-of-home placements and possible abuse and neglect situations, preserves the family unit, and supports family stability.
helps parents, caregivers, and professionals find respite services in their state and local area. The service is also useful when a family travels or must move to another state.
There seems to be two different kinds of respite care
the first is funded by the United Way that pays for respite workers
usually have to find your own worker but they will be paid) and the
is unfunded so you pay -at Clearbrook $50 per month for a volunteer who
will come into your home each week for about 4 hours usually in the
to care for all your children or at Easter Seals you pay $8 per hour
there is no limit. Some families use the first (free) kind to
ABA therapists. With an autism diagnosis your child is probably
for about 15 hours per month of paid respite. There are different
agencies to contact for the funded type depending on your region. One
agencyiss Glenkirk, call and they will direct you to the
agency for your location. They are at 847/394-2171. Other contacts are:
Clearbrook Center at 847/634-2420, Easter Seals
Or contact any social worker or social services ageny - if they do not
provide respite they jolly well should be able to tell you who does in
Autism Resource Network - has a quarterly newsletter full of up-to-date information, and a wonderful mail order book store of the best literature on autism (also some educational toys etc.) You will want to contact them for a **free book store catalog** and sample newsletter. Write the Autism Resource Network, 5123 Westmill Rd., Minnetonka, MN 55345. (612)988-0088.
Autism Research Review - Another quarterly newsletter! Summarizes a lot of the medical research that is going on regarding autism, so you donít have to read dozens of pithy technical journals. Published by Bernard Rimland, Ph.D., parent of an adult child with autism, and head of the Autism Research Institute. ARI also has accumulated collections of articles on related topics that can be requested for only a nominal zeroxing fee.
4182 Adams Ave.,Advocate - national newsletter of the Autism Society of America. Includes information on conferences around the country, parents stories, etc.
San Diego, CA 92116
of Illinois Autism Society - good on relating activity in
that may affect local education law, etc. Contact:
**Autism Society of Illinois**
2200 S. Main St., Suite 317
Lombard, IL 60148
to join ASA, subscribe to Advocate/Promise, and learn whereabouts of local chapters. ASA / ASI also has lotsa info for new parents!
PEAK Parent Center
An advocacy organization that creates curriculum and materials focused on including students who have disabilities as active members of their schools and communities has compiled a wonderful collection of materials. To get you own list of PEAK resources write:
PEAK Parent Center, Inc.
6055 Lehman Drive, Suite 101
Colorado Springs, CO 80918
Mothers from Hell 2
P.O. Box 19
German Valley, IL 61039
Mothers From Hell2
Is a monthly publication for parents of children or young adults with a disability or special needs. I have been reading Exceptional Parent for about five years, now, and although not every issue has an article specific to autism, the overall information I have gleaned on insurance, special education laws and inclusion practices, advocacy, etc has more than justified the subscription price ($32/12 issues). To subscribe call 1-800-562-1973 - or look for the magazine at local Borders Bookstores.
**Different Roads to Learning**
Has a great catalog chock full of stuff useful to the parent of a special needs kiddo. Toys, photo cards, books, computer games - and most everything particularly geared towards the needs of the child with autism. Small wonder - it is another mom of a kid like ours who has formed this company and sends out this catalog! I highly recommend you call 1-800-853-1057 and request a free catalog today!
Retts Syndrome - If your daughter has been thus diagnosed, please contact the Rett Syndrome Association of Illinois at 847-342-9105. They will be a lifeline of support and information.
The Morning News
contains useful articles each issue that can be used to help more advanced children with autism/Aspergerís correctly interpret, and appropriately use social language. The Morning News is an excellent publication, largely written by Carol Gray, creator of Social Stories. To subscribe send $18 for four big quarterly issues to: The Morning News, Jenison Public Schools, 2140 Bauer Rd., Jenison, MI 49428. Or - just write and ask for a list of all Grayís publications on Social Stories (including several useful books.)
20 E. Jackson Blvd, #900Publishes a newsletter on disability rights and benefits. Provides up-to-date information on SSI (Social Security Income - some of you may find your children qualify as autism is a covered disability.), Medicaid, IDEA (Individuals with Disabilities Education Act), etc. Lots of information on your childís education rights, how to deal with your local school and write an appropriate Individual Education Plan (IEP) and more ( they keep their eye on the antics in Springfield!). A great resource. They will also train you to participate in an IEP meeting.
Chicago, IL 60604
National Information Center for Handicapped Children and
your federal tax dollars at work providing free general information on disabilities, including Autism/PDD, education rights, and more:
National Information Center fortop
Handicapped Children and Youth
Washington, D.C. 20013-1492
|Support Groups||Illinois Family Assistance Program||Books||Articles|
|Newsletters||Therapies/Treatments||Private Schools||Dietary Treatments|
|"Twelve Commandments"||Research||More Resources||ABA|
|Educational Materials||Autism Society therapy summary||Extra Stuff||tax deductions updated link!|