Autism News Network

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Packet of Information for Parents New to Autism,

 (on-line version)




moving into the ABA portion of this packet..........

A.B.A.

IL F E A T

Illinois  Families for Effective Autism Treatment
has currently formed an Illinois chapter.
The Goals of Illinois FEAT include:


Parent volunteers from Chicago to Springfield are already involved  in Illinois FEAT.  Heavy duty fund raising to make the above goals  reality will commence as soon as more volunteers with great ideas jump on board! To get on the IL-FEAT mailing list for more information and to help us gather  together the most parents possible who want the above goals to become reality, please send your name/address/phone, (and e-mail address if possible) to:

IL FEAT
P.O. Box 401
Frankfort, Il  60423-0401
ILFEAT@aol.com


***Thanks to all the parents who had input into this little packet, especially Rebecca C., AnnMarie C.,  and Julie M. who compiled the following attached information on ABA.  And to myself, JFS, for cramming it all together.  Sole responsibility  for  typos  or errors  rests  with  the gremlins in  my  computer.***

How to get started finding out about running an intensive home based discrete trial program (also referred to as applied behavior analysis or ABA) for your child in the Chicago area [bracketed info by JFS, all else by Julie M.]: Frequently the first suggestion made to parents interested in ABA programs for their child is to read Let Me Hear Your Voiceî by Catherine Maurice (available at most area libraries).

Contact some area parents who have agreed to let their programs be observed by other parents of newly diagnosed children. There are many parents in the Chicago area running these programs, some openly and some not. To find out who is in your area running a program which you could observe contact:   Julie M.  julieman@juno.com (or contact IL-FEAT!! Or ask via the on-line AutismNews list!!)

A book that many families use to get started on their own with a home based program is "Behavioral Intervention for Young Children with Autism" edited by Catherine Maurice (see page one of this packet for more information).

Searching the Internet for ABA information:
The following are two of the very best places to get started but the internet is a vast source of information on autism and ABA. Do a keyword search with your favorite search engine to turn up more but start with these two: The Recovery Zone is a web page that focuses exclusively on discrete trials therapy for autism. It has numerous links. The address is:  http://pages.prodigy.com/dporcari/recovery_zone.html

ME-list

The ME-list is a private email list that was formed in order to provide a forum  for discussion among parents and professionals using discrete-trial-based therapies for children with autism and related  disorders. In addition to discussion of these therapies, other related issues are also discussed on the ME-list - in particular matters relating to early diagnosis of autism and related disorders, dealing  with school systems and medical professionals and practical aspects of setting up home-based intervention programs are often addressed. It is highly recommended to new families since over 1200 members worldwide offer their experience to share with newcomers.  In order to subscribe to the ME-list, you simply need to send an email  message to Ruth Allen (rallen@indyvax.iupui.edu) stating a specific,  valid reason for wishing to join this list.

Funding:
There are several ways to approach the funding problem inherent in such an intensive program. Some families have successfully gotten full funding from insurance companies, while others have gotten at least some coverage from their insurance companies. Others have prevailed in due process (or reached settlements) with various school districts). There are other funding possibilities in our area, some are income dependent and some are not.

And, thinking about asking the school district to pay? Contact:

Mary Jane White
P.O. Box 358
Waukon, IA  52172
(319)568-3551
An attorney and parent of a child with autism  successfully recovered by Applied Behavior Analysis,  Ms. White has compiled the due process results of families nation-wide who have fought their school districts and won either the school district paying for the home ABA program or, the school having to offer the program itself.  If you are considering  ABA  for  your  child you will  want  to  request Ms. White's materials.

Hiring Therapists: Some families have gotten great volunteers from their churches or temples. Other families have been successful with approaching colleges and working out arrangements with professors to give college credit to students working in ABA home programs. Colleges are also good places to put up help wanted ads in general for students to work as therapists. The Daily Herald and Pioneer Press give a big discount to families who are advertising for therapists in the help wanted section.   [Home-schooled teenagers make surprisingly good therapists, with sufficient training, and can be available in daytime hours!]

Providers of ABA In-Home Workshops:

Many  ABA consultants have lengthy wait lists. Best to just get on several wait lists - bear in mind once you get started it canít hurt to still be on a wait list or two in case the initial consultant doesnít, for whatever reason, work out.   And, yes, it is best to have a consultant - it is easy to  make well-meaning mistakes that work to your childís disadvantage.  This is a problem with many school districts that attempt to offer ABA in the classroom using non-ABA - trained/experienced ìautism experts.  You the parent have to take the initiative in starting up your childís ABA program and in enlisting a consultant to supervise/train home-based therapists AND and school folk you may use.

Local  independent  consultants (please request credentials and references to other families using  them) include:

Patricia Morrisey Ahn 847-543-9687
Kim GarHey hoehne 847-549-7067
Ann Maxwell 773-276-1740

Opening in 2003 in the NW Suburbs:  www.theraceschool.org
Selma Martinez, M.S.Ed., BCBA
Board Certified Behavior Analyst
ABA Chicago, Inc.
290 N Rand Rd, Suite C
Lake Zurich IL 60047
(847) 997-7157
ABAChicago1@aol.com  


My name is Michele Sevart. I am a Board-Certified Behavior Analyst and have recently moved to Gurnee, IL  from Massachusetts. I had a baby, my third, about 4 months ago and am ready to begin working again. I have worked with children and adults with autism and have done many trainings in the areas of autism and applied behavior analysis, including teaching a couple of courses for Northeastern University. I received my Master's at KU and have held positions at the May Institute and Bancroft Neurohealth. I will be happy to send my resume to anyone who is interested. Please send me an e-mail directly with your questions.

Ms. Crystal Held- C.H.I.L.D. LLC (Crystal Held: Interventions for Learning and Development) provides consultation to families with children diagnosed with autism, PDD NOS, and Aspergers Syndrome. Treatment strategies are based on the work of Dr. Ivar Lovaas and the principles of ABA. Other strategies that are utilized when appropriate include PECS, social skills training, natural environment training, verbal behavior, and play therapy. Because parents are the experts in what motivates their children, their ideas are welcomed!

I have worked with children with autism related disorders for 13 years and have had extensive training in the field. I was fortunate to be chosen to complete an internship at UCLA with Dr. Lovaas and his staff. I enjoyed working as the Clinical Director at the Wisconsin Early Autism Project and the Illinois Early Autism Project. I supervised the replication study where 42% of the children achieved average IQs and were successfully transitioned into school without support. I have attended many conferences and training workshops (PECS, Greenspan, verbal behavior, fluency training, precision teaching) and have presented at ASW and to school systems around the country.

Because of my extensive experience, I am able to create programs that will benefit your child without "trial and error" approaches. I created many of the programs that are currently implemented at WEAP and was responsible for the organization of the new flowchart of program skills. My philosophy is that therapy must be fun in order to maximize a child's learning experience.

If you are interested in starting up a program and live in the Chicago suburbs or Rockford area, you can contact me at (262)370-6964 or at dcheld@juno.com for a complimentary assessment. I look forward to helping your child.



2003-2009 -- Autism Solutions

Autism Solutions provides services to families and their child with Autism, PDD, or
related developmental disorders.   We provide intensive supervision of quality ABA
programs.   Our therapy is based on the work of Ivar Lovaas at UCLA.   His therapy
approach is the only one with controlled follow up studies.  
2009 update- Jeni Clark (Camfield), President of Autism Solutions was formerly the Clinic Director of Illinois Early Autism Project (branch of Wisconsin Early Autism Project).   She has years of quality experience working with children on the spectrum and designing programs to meet their specific needs.   Since each child is completely different, she develops programs that may include other approaches such as, Greenspan’s Floor Time.   She is passionate about addressing social deficits using techniques such as video modeling, social stories, and Peer Play.   The ABA program is PLAY-based.   She firmly believes that therapy MUST be fun for both the child and the therapist.   Parents are trained and remain intensely involved in their child’s program.   Siblings learn how to interact and play together in a positive manner.

To request further information please e-mail Jeni at: JenCamfield@aol.com


there is another local consultant affiliated with the
New Jersey Institute for Early Intervention
P.O. Box 136
Haddonfield, NJ  08033-0144
(609) 616-9442
it is worth contacting them and requesting to be put on the wait list for their Chicago-based consultant, (she is fantastic!!!!! but shy and doesnít want her name herein) or the one based in Northern Indiana. You can decide whether to switch consultants when your childís name comes up.


Don't know him, but he sent the info:
I'm an ABA consultant (BCBA) who is offering remote consultation by fax, email and
phone to parents running ABA programs for $30/hour. Those interested can email me at
gcbisset@hotmail.com for further details.

Could you add me to your list of ABA resources?

Thanks,

George

The Multi-Site Young Autism Project -

Replication Sites (USA only listed here).

Wisconsin Early Autism Project, Inc.
6402 Odana Road
Madison, WI 53719
(608) 288-9040
(608) 288-9042 fax
WEAP has branched out and has consultants available in Illinois, many parents in this area use WEAP.
 Illinois Early Autism Project
 63 Park Blvd.
 Villa Park, IL  60181
 630/941-8663

University of California Los Angeles
Early Intervention Project
Department of Psychology
P.O. Box 951563
Los Angeles, CA 90095-1563
(310) 825-2319, fax (310) 206-6380

Lovaas Institute for Early Intervention
2566 Overland Avenue, Suite #530
Los Angeles, CA 90064-3366
(310) 840-5983, fax (310) 840-5987

Central Valley Autism Project
1201 Patterson Road
Modesto, CA 95356
(209) 578-4271, fax (209) 523-0171

Washington State University
Department of Psychology
Pullman, WA 99164-4820
(509) 335-7750, fax (509) 335-2522

The May Institute
940 Main Street
P.O. Box 899
South Harwich, MA 02661
(508) 432-5530 *211,  fax (508) 432-3478

Community Services for Autistic Adults and Children
751 Twinbrook Parkway
Rockville, MD 20851
(301) 762-1650, fax(301) 762-5230
Pittsburgh Young Autism Project
Intercare - Brentwood Office
4411 Stilley Road / Route 51
Second Floor, Suite 202
Pittsburgh, PA 15227
(412) 881-3902, fax (412) 881-3599

Autism Research Center,
301, Cater St
Anderson, SC 29611
Tel: (864) 260-9005
Fax: (864) 226-8902
REM Consulting & Services, Inc.
3101 West 69th Street, #121
Edina, MN 55435
(612) 926-9808, (612) 926-4002

University of Houston
Psychology Department
4800 Calhoun
Houston, TX 77204
(713) 743-8618, fax (713) 743-8633

Meredith Autism Program,
Meredith College Psychology Department,
3800 Hillsborough Street,
Raleigh, NC 27607-5298
Tel: (919) 829-7560, Fax: (919) 829-2303

Other Sites Offering ABA Services or Information

Center for Autism and Related Disorders (C.A.R.D.) 23300 Ventura Blvd.
Woodland Hills, CA. 91364
(818) 223-0123
(818) 223-0133 FAX
CARD is also much used by Illinois parents, and has a good reputation.

Alta California Regional Center
2031 Howe Ave, Suite 100
Sacramento, CA 95825
(916) 929-0500

Resources in Autism Education
4455 Torrance Blvd., #801
Torrance, CA  90503-4335
310-328-1367
www.autismed.com

ABC, Applied Behavior Consultants
(800) 435-9888

Valley Mountain Regional Centers (CA)
P.O. Box 692290
Stockton, CA 95269-2290
(209) 473-0951

Bancroft School
P.O. Box 20
Hopkins Lane
Haddonfield, NJ 08003-0018

The Early Childhood Intervention Center, Inc. (ECIC)
2124 Broadway, #338
New York, NY 10023
Tel: (212) 663-7983, Fax: (212) 663-2215
e-mail ecic@ecicnyc.com

Rutgers Autism Program
41 Gordon Rd Suite A
Piscataway, NJ 08854
Tel: (732) 445-1141, Fax: (732)-445-7970

Innovative Developments for Educational Achievement, Inc. (I.D.E.A.)
20 Washington Ave., Suite 108
North Haven, CT 06473
(203) 234-7401

Project PACE
9725 S.W. Beaverton Hillsdale Highway, Suite 230
Beaverton, OR 97005
(503) 643-7015

New England Center for Children (NECC)
33 Turnpike Rd
Southboro, MA 01772
(508) 481-1015

Autism Partnership
200 Marina Drive, Suite C
Seal Beach, CA 90740
Tel: 562-431-9293

Greg Buch, Ph.D.
3116D Oakroad, Suite 106
Walnut Creek, CA 94596
(510) 938-4508

Keli Larson, M.A.
1508 8th Ave, N.E.
Rochester, MN 55906
(507) 282-0516

Partners in Therapy, Inc.
804 Park Ave.
Collingswood, NJ 08108
(609)858-3673

Oak Forest Psychological Services
2834 Bill Owens Pkwy.
Longview, TX 75605
(903) 759-6588

Behavioral Intervention Associates
14 Crow Canyon Court, Suite 100
San Ramon, CA 94583
(510) 855-1350

Childrenís Hospital, Inc.
Department of Pediatrics
Division of Psychology
Ohio State University
700 Childrenís Drive
Columbus, OH 43205-2696
(614) 722-4700
(507) 282-0516

      more......
Reaching Potentials, Inc.
Attn: Pam Gorski, Executive Director
7390 NW 5th Street, #9
Plantation, Fl 33317
Tel: (954) 321-7393, Fax: (954) 321-1019

Early Childhood Autism Program
Attn: Patrick M. Ghezzi, Program Director Department of Psychology
University of Nevada Reno NV, 89557 (702) 786-1448

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Discrete Trial Software

Mouse Trial is a software package based on the Discrete Trial Method.
This site provides good information about the method and autism, many links,  and provides the software online or on CD.

Features:


Discrete Trial Trainer
I am Karl Smith, father of an autistic son. I have created software to help children like my son. The program incorporates powerful behavioral principles to get even children that require one-on-one instruction to usually become independent learners on the software. It is quite customizable to accommodate various types of educational approaches as well as individual differences. The program complements various educational programming and interventions. The program is used widely with individuals with autism, other learning disabilities, and even typically developing children. Frequently in home situations, the young siblings of our target child will also like to use the software giving great role models and a sense of belonging for our target child.

This is a large program with over 125 content programs and hundreds of selectable reinforcers to motivate our kids. There is a wide range of potential reinforcers to engage even the most difficult to motivate individuals. You can even add your own child specific reinforcers. The content is in the developmental range of 2 to 8 years old and can work with even very low functioning individuals to typically developing but young children. Older children or adults that are severely delayed frequently respond to the software since we do not baby the student. How juvenile the software looks is dependent on the reinforcers picked for the student so that the software can accommodate very young children to severely delayed adults.

So that most families can afford the product, I only charge $99 for the home license and there is a $10 trial. This is incredibly cheep for such a huge product but it needs to be inexpensive to allow most of our kids to get access to it. Since most even very low functioning children can use the software independently, the program can deliver many thousands or even tens of thousands of dollars of equivalent education. I price the software to not compete with money needed for other services and treatments. My mission is to create effective but also affordable tools to help individuals with autism and other learning disabilities.

The software collects data for reports to easily determine the effectiveness with a specific child. For a $10 home trial, it is virtually free to try the software. The $10 covers our shipping and handling costs and applies to the full price if purchased within 60 days.


Packet Contents

Support Groups Illinois Family Assistance Program Books Articles
Newsletters Therapies/Treatments Private Schools Dietary Treatments
"Twelve Commandments" Research More Resources ABA
Educational Materials Autism Society therapy summary Extra Stuff tax deductions updated link!

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